hi i have raynauds disease and its difficult because no one understands the severity of it. like they all know i have it, i told them when i was diagnosed with it, but they just don't understand ( i mean like my family&relatives). does anybody else out there have it? what do you do to help treat it. can you please just tell me about personal experiences or provide me with some insight on it. thanks so much. oh and please dont tell me to talk to them, because it just wont work,theres a communication barrier between us. so thanks again. really appreciate it.
[ Answer this question ] Want to answer more questions in the Health & Fitness category? Maybe give some free advice about: Health? Elcee answered Friday February 8 2008, 6:23 am: My daughter has Raynauds and she does have a few problems in her daily life. If she has to buy milk, for instance, even in the summer she has to wear gloves to get it out of the section in the supermarket. She tends to wear at least 3 pairs of thermal gloves during the winter and a single pair during the summer if the Raynauds is causing a lot of pain.
She also needs to wear socks constantly to keep her feet warm. If she is going somewhere really cold then she takes heating pads with her.
Here is an email address which you might find useful:
Trauma answered Friday February 8 2008, 2:37 am: I don't have raynaud's disease, so I can't really help you with trying to treat it, but I do have a kidney disease called FSGS, and I know how it feels to have to deal with something that you can't really talk to your friends or family about since they don't understand.
First of all, though, have you talked to your doctor about ways to treat it? You can also find a lot of sites with information and possible treatment options for the disease.
And if you want to talk to someone with the disease so that they understand, try looking for online support groups. That's what I did to help me.
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