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7 year old with a cyst
My 7 year old son is diagnosed ADHD, Asperges and Anxiety. One of his doctor brought up possible frontal lobe syndrome. After speaker with his peds doctor we decided to run a CT Scan. Which came back to him having a cyst. The woman that called with the results couldn't tell me much other than he has a cyst on his brain and they would need to do an MRI due to him not being able to stay still we are being referred to a child's hospital and a neuro doctor. He has also been having trouble with his heart he is scheduled for a echo next week. I'm a single mom of two and I don't know who to talk to about any of this I don't have many friends I'm newly divorced moved to a new area.
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I would hope and wish that the child's father would have an interest in his children's well-being. I understand you two are newly divorced and whatever the problem is between the two of you can and should be put aside for the benefit of the children.
IF you feel you cannot speak to him directly then find a way to contact him about this for he needs to know. You can have your lawyer contact him or contact his parents. He should be informed. Whether he cares to do anything or participate in the child's medical care is up to him. IF he does chose to participate the two of you can be civil with each other for your sons benefit during those times you are together.
Now what and who to talk to: You want to talk to the doctors and be your sons’ medical advocate. I understand given his medical condition as you have described my wife and I would be scared out of our wits. It is okay to be scared but you also have to be strong for your son.
Make sure you understand what the doctor is telling you. If you have questions when you see the doctor(s) write them down; make sure you get them answered. You also have a right to second opinions. Your insurance company will pay for a second opinion.
A Cyst is usually just a Cyst. Given where it is at the doctors may want to drain it rather than remove it. There are probably different techniques for doing so. I would think the less invasive the techniques the better if possible, this is definitely were you would want to get a second opinion especially if this doctor wants to remove it.
As for his heart problem: Here again based on what the doctors tell you you need to ask questions to make sure you understand what the problem is and how they want to fix it. It is quite possible this is a problem that with medication and time he will grow out of or it may be a problem the doctor feels needs surgical correction. IF so there is a number of techniques different doctors use for different problems. Once again getting a second opinion is the right thing to do.
The child's father should be informed and you should allow him to participate in these discussions even though you may have sole custody. Whether he chooses to do so is up to him. If he chooses not do and you need help with any of the decisions you need to make you can always ask for help from the hospital social service workers.
It is okay to be scared for you have every right to be until you find out just what you are facing medically with your son. You also need to be strong and be his advocate. You can do this, you're a mom and moms are the toughest creatures/people on the planet, I am not kidding when I say this.
If you have questions you do not feel you are getting answers to write back to me. I have some medical insight and what I don't know I can research for you or ask my son who is a paramedic.
The only thing I ask of you is to put aside whatever differences you and your ex have for the benefit of your son.
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