I recently have had several trips to the doctors due to my SEVER back pain. I have gone to the kyropractor my regular docto had xrays and today went to a physicle therepist. she ran a bunch of tests on me. She didnt come up with the idea that i had MS but after talking with her I Have a feeling its a good possibility i do.
I've done my research looking up symptoms online and I fall under several of them almost all! I don't know what to do Im young and Im scared. Im going to bring it up to my doctor when i visit in a fiew days but I feel like doctors never believe me even when im right.
If someone with MS could possibly speak with me or tell me what to do or anything id apriciate it
Additional info, added Tuesday March 17 2009, 3:49 am: I thought id list some of my symptoms
-sever back pain
-Complete loss of muscle strength
-twitching of the leg muscles && difficulty straightening them
-i find my neck/ shoulders tensing up and rising without me knowing and i cant controle it
-feeling of pins and needles
-If i sit a certain way to long my numb
-sever joint pain
-constant fategue (sp?)
-i already have depression so idk if that matters
-muscle spasms in my back sometimes
Prior symptoms that could relate to ms
At another time I had sever back pain
I had a bowl movement (number 2) that
I couldnt controle at all it just came out
It felt wet and i didnt know what it was until
i was in the bathroom.
Sudden blurred fision of one eye
thats just some Idk if that helped or if that was a waist.
My mother used to get pins and needles but then suddenly go numb
- she would have/has no control over her bladder
- she couldn't see properly , and went blind for a few months
- always tired
- consistent back pain except for when she laid down. She still has it now. Permanent
- diffculty standing up sometimes
- twitching and spasms
BUT don't get upset if you have it, because doctors can be wrong. They said my mum had a WEEK to live. Yet she is still here today. Standing. (by the way MS does not cause you to die...)
Anyway I'm sure you want to know a lot a bout it so here it goes.
To put it simply, it sort of means the messages your brain sends to your body, don't always reach your body, and therefore your body doesnt operate as much as you'd like it to.
It's unpredictable for my mother. One day, she is walking perfectly fine, with a walking stick - yet another day she could be in a wheel chair, and other days cant move at all. But there are different types of MS. My mother has it bad, for all you know, you could be ok. It doesn't affect you physically. Which in some sense it's UNFAIR because people judge you and think your ok, and mistreat you ie : don't give up a seat for you etc etc.
MS affects my mum in the sense she has take a lot of pills . Mainly for her bladder, and to make sure she is getting enough vitamins to keep her strong.
It's a bit of a bummer for my mum - she can't run, hasn't been swimming or dancing or gym for 8yrs. HOWEVER MS affects peoplein different ways, and you could be lucky and now get it bad. I highly doubt you will.
I think you'll find that you'll need help and support. Sometimes you'll find you just can't do anything. Ever since I was 5, it's what I had to do, get up, change her wee bag (fortuantly her bladders slightly better, a wee pad does her just fine. Sorry if too much information), Sometimes you will be down, and people don't understand you. I know my mum feels like she misses out sometimes.
But it is easy to get help now. My mum's MS has got a lot better these last couple of years.
It's unpredictable. You never know how you're going to feel.
Having MS means your likley to catch things easier. Your immune system is usually very low..and so if you get a simple cold, its harder on you. Having MS means you have to drink a LOT of water. You are always peeing a lot, therefore you need to top yourself up with water - if not, you could have bladder infections - which is what my mum has had a lot of times.
By the way, depression doesnt count, but ig you do have it, it will make you feel down some days. But with support from family and doctors you will always be ok.
I think you should urge your doctors , I really should. It's not fair you should suffer like this..
Three things that have worked amazing for my mum is a MAGNET BELT. A belt with magnets in them take away some of the back pain, ease it. A WHEAT BAG. Heat it up in the microwave , it keeps you warm and eases mucles. I can't remember what it's called, but message me if you want the name but my mum used some sort of MAGIC MUD on her feet- and she suddenly got some feeling back in her feet. And she never has feeling. She can't drive because of it.
I have made MS sound bad, but really, it isnt as bad as it seems. My mum has it severe.
Eldritch answered Tuesday March 17 2009, 3:01 am: I don't have MS myself, but I've got PLENTY of experience when it comes to injuries, back pain, and moronic doctors who refuse to listen to reason.
First of all, do not let your doctor call the shots. You said you're young, but that doesn't mean it isn't your body. It doesn't mean that someone else knows your pain better than you do.
If they refuse to do testing you feel is necessary, stand your ground (unless the risk of the procedure is greater than the risk posed by not having it done).
If you really think this is MS, you need to be referred to a neurologist for testing.
The problem with doctors is that they are some of the most devout believers in the concept of CYA: Cover Your Ass. You'd think this would make them more thorough and efficient, but in fact it makes them exactly the opposite. They have to answer for their mistakes, and answer well, so they tend not to do much of anything.
They most often refuse to take risks based solely on what a patient says, so print out the information you found on MS and highlight your symptoms.
Do not let your doctor rush you out of the office. Stay put, voice your opinion, and make sure you're comfortable with whatever is suggested.
Also, try not to worry too much. It could turn out to be something less serious, and then you'll have made yourself sick worrying for no reason.
If it turns out you're right, then trust that God is looking out for you and has a plan.
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