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Tourettes?


Question Posted Sunday December 7 2008, 10:23 pm

Ok i have Vocal Tourettes so i make noises, and have hiccups 24/7, I hate it, ppl look at me all the time and sometimes laugh. How do i deal with it?? its hard sometimes

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BarryMaccaukner answered Thursday December 11 2008, 1:08 pm:
I don't know if there is something in our local water supply or something, but I actually can name 5 people with tourettes. One of my friends has really bad ticks. He doesn't actually swear or say any real words. What he says sounds like "Sutt" , but I know if he tries to suppress it , he gets a very noticeable physical tick.
I also noticed with ALL of them that if they are uncomfortable or feeling nervous that their tourettes go crazy.
One thing you will have to do is to get comfortable with the fact that this is how your body works now.
If you stress out about it it's gonna be a catch 22. You will actually make your tourettes act up worse by worrying about it.
I know it bothers you that people look , but you will have to get used to it. I don't know what advances have been made regarding medicine for your condition, but regardless the solution to this problem is in your hands.
I think acceptance is your only real recourse. People are going to look. What can you really do?
Most people now days are familiar with tourettes so maybe it will make you feel better to know that 20 years ago my friends dad beat him over his ticks. He thought he was just being a smartass. At school I was his only friend cause no one knew about tourettes at all and just thought he was a spaz.
Keep your chin up and be confident in yourself. Your tourettes is a part of you but it doesn't define who you are.

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Brandi_S answered Thursday December 11 2008, 7:47 am:
I have no idea what it's like to walk in your shoes, but I'll try to help.

When people look and laugh, you could try to laugh with them. If you're walking down the street when you encounter these people, they have no idea that you aren't making the noises on purpose. They may just think you're doing it to be comical.

For example, if you walked by me and made noises, I'd probably laugh. Not to be mean to you, but because I'd figure you were doing it purposely to be funny. I wouldn't be laughing AT you. Does that make any sense?

Or you could just explain, "I have Tourettes." However, I honestly don't see why you should feel you have to explain yourself to everyone you pass in the streets.

Or, you could always use your outbursts as props to crack jokes. It makes others laugh, and it makes you laugh with them. I have my flaws (we ALL do) and finding humor in them, and sharing that humor, makes me feel good about myself. It makes me feel good to be able to crack jokes about myself and get a good laugh out of someone.

I don't know. Maybe none of my suggestions are what you're looking for. Like I said, I have no clue what it's like wearing your shoes.

I agree that surrounding yourself with supportive people is a fine idea. However, that also puts you in the position of living your life in a bubble. If you ask me, that's no way to live your life.
Have a support system, but go out and enjoy the world. The world can be a cruel and cold place sometimes, but in the end of the day, you have that warm group of people waiting for you.

I know you hate it, but try not to. Tourettes is a part of who you are. Don't hate who you are at any cost. Try to learn to like everything about yourself. Life doesn't seem so hard when you do.

Hope that was some sort of help to you. :-)

ygs-30/f

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HardKnockLife answered Monday December 8 2008, 3:23 pm:
It's important for people with Tourettes to have an environment that is supportive and flexible. Those with TS frequently, especially kids, have problems because they are teased by peers and misunderstood by others. It's important to educate friends, students, the teachers, and others in contact with you about the disorder. When people don't understand something they fear it. Unfortunately, some people deal with fear by being mean. The more people know about your condition the less likely they are to act the way they do. You might even find that through understanding friendships may develope. There will always be someone who doesn't get it. That's just life. Just remember that no one is perfect and everyone has something that they have to deal with. We just don't always see it as easily. There's a great book titled "Tic Talk, Living with Tourette Syndrome", written by Dylan Peters. It talks about tolerance and acceptance and may help you by giving you a point of view from another person with TS.

Good luck!
L.C.

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