|
|
hi i have raynauds disease and its difficult because no one understands the severity of it. like they all know i have it, i told them when i was diagnosed with it, but they just don't understand ( i mean like my family&relatives). does anybody else out there have it? what do you do to help treat it. can you please just tell me about personal experiences or provide me with some insight on it. thanks so much. oh and please dont tell me to talk to them, because it just wont work,theres a communication barrier between us. so thanks again. really appreciate it.
I don't have raynaud's disease, so I can't really help you with trying to treat it, but I do have a kidney disease called FSGS, and I know how it feels to have to deal with something that you can't really talk to your friends or family about since they don't understand.
First of all, though, have you talked to your doctor about ways to treat it? You can also find a lot of sites with information and possible treatment options for the disease.
And if you want to talk to someone with the disease so that they understand, try looking for online support groups. That's what I did to help me.
Good luck.
[view]
(Rating: 5)
hey thanks so much, really appreciate it. im sorry that you can't talk to your friends and family, but your not alone !
| |
