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i have pityriasis rosea
13/f
i have this skin disease called "pityriasis rosea" [theyre like itchy spots all over your body!] and the dermatologists have said theres nothing to cure it so wait patiently for it to fade away. and i cant wait for it to be gone! and im most especially w0rried ab0ut n0t getting to wear nice clothes like for graduation, my high school prom, weddings, all that. i always have to wear long sleeves or turtle necks. And i feel embarassed with my skin so i always have to cover it up. D0 you know anything about this disease? maybe you can help me with what to do and still feel like a normal person. please help and thank you very much .
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Well, I do have to admit I am not too awful familiar with your condition. However, I want to help you, so I spent all morning researching the condition. The most helpful things I have discovered have been found on the page below (copy & paste to your browser bar)
[Link](Mouse over link to see full location)
Let me tell you a quick story. I knew a lady in school for many years. She had a skin condition that caused her to look as if she was perpetually sunburned. It was very painful and she missed a lot of school for treatments (that were necessary). Nobody made a big deal of it, because she didn't make it an issue. The first and only time I ever heard somebody question her ("Gross, what happened to your skin?") she snorted and replied "Ugh, the same thing that happened to your good manners."
The important thing is not to let it embarrass you. Those who choose to look at you and be offended should be put back in their place, really. For those special occasions that you speak of, go ahead and dress to the nines darlin'. I am positive that everybody at those events will be focused more on the event and the wonderful outfits before they even look at your skin. The rash does not define who you are, it is just something that happened to you. You are not less of a person or less worthy of respect and kindness because you have this.
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I really don't know a single thing about this disease but here's a site that might help:
[Link](Mouse over link to see full location)
just google it and see what you can come up with.
Also sooner or later, people are going to have to deal with problems like this in their life time and it really does suck. But really, you didn't bring this upon yourself and you didn't make it happen. So there is nothing to be ashamed about. But since there is school and all that jazz with kids that are just immature and insensative, it's gonna be a little tough to remain "cool" i guess.
Just wear what you're wearing right now and don't feel too self concious about it. I don't know where you live but where I live it's starting to get really cold so just say that you're cold. And feel thankful that it appeared in the cold season =D
Sorry I couldn't provide any help or make any sense among my rambling up there....
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