about

I joined this site when I was very young (hence the ridiculous username) but now I feel I'mn old enough to give out advice.

Ask me anytime. I have had my fair shares of family issues, as well as good at solving relationship problems.

advice

I recently have had several trips to the doctors due to my SEVER back pain. I have gone to the kyropractor my regular docto had xrays and today went to a physicle therepist. she ran a bunch of tests on me. She didnt come up with the idea that i had MS but after talking with her I Have a feeling its a good possibility i do.

I've done my research looking up symptoms online and I fall under several of them almost all! I don't know what to do Im young and Im scared. Im going to bring it up to my doctor when i visit in a fiew days but I feel like doctors never believe me even when im right.

If someone with MS could possibly speak with me or tell me what to do or anything id apriciate it

I was 5 when my Mum was diagnosed with it.

The symptoms you do have, sound like it.


My mother used to get pins and needles but then suddenly go numb
- she would have/has no control over her bladder
- she couldn't see properly , and went blind for a few months
- always tired
- consistent back pain except for when she laid down. She still has it now. Permanent
- diffculty standing up sometimes
- twitching and spasms

BUT don't get upset if you have it, because doctors can be wrong. They said my mum had a WEEK to live. Yet she is still here today. Standing. (by the way MS does not cause you to die...)


Anyway I'm sure you want to know a lot a bout it so here it goes.
To put it simply, it sort of means the messages your brain sends to your body, don't always reach your body, and therefore your body doesnt operate as much as you'd like it to.

It's unpredictable for my mother. One day, she is walking perfectly fine, with a walking stick - yet another day she could be in a wheel chair, and other days cant move at all. But there are different types of MS. My mother has it bad, for all you know, you could be ok. It doesn't affect you physically. Which in some sense it's UNFAIR because people judge you and think your ok, and mistreat you ie : don't give up a seat for you etc etc.

MS affects my mum in the sense she has take a lot of pills . Mainly for her bladder, and to make sure she is getting enough vitamins to keep her strong.

It's a bit of a bummer for my mum - she can't run, hasn't been swimming or dancing or gym for 8yrs. HOWEVER MS affects peoplein different ways, and you could be lucky and now get it bad. I highly doubt you will.

I think you'll find that you'll need help and support. Sometimes you'll find you just can't do anything. Ever since I was 5, it's what I had to do, get up, change her wee bag (fortuantly her bladders slightly better, a wee pad does her just fine. Sorry if too much information), Sometimes you will be down, and people don't understand you. I know my mum feels like she misses out sometimes.

But it is easy to get help now. My mum's MS has got a lot better these last couple of years.
It's unpredictable. You never know how you're going to feel.

Having MS means your likley to catch things easier. Your immune system is usually very low..and so if you get a simple cold, its harder on you. Having MS means you have to drink a LOT of water. You are always peeing a lot, therefore you need to top yourself up with water - if not, you could have bladder infections - which is what my mum has had a lot of times.

By the way, depression doesnt count, but ig you do have it, it will make you feel down some days. But with support from family and doctors you will always be ok.

I think you should urge your doctors , I really should. It's not fair you should suffer like this..

Three things that have worked amazing for my mum is a MAGNET BELT. A belt with magnets in them take away some of the back pain, ease it. A WHEAT BAG. Heat it up in the microwave , it keeps you warm and eases mucles. I can't remember what it's called, but message me if you want the name but my mum used some sort of MAGIC MUD on her feet- and she suddenly got some feeling back in her feet. And she never has feeling. She can't drive because of it.

I have made MS sound bad, but really, it isnt as bad as it seems. My mum has it severe.

Message me for anything else

Sadie

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(Rating: 5) thanks i really apriciate it, and your time. its hard because i had to come to the realization on my own and havent told my parents yet cause i knwo they'll just blow me off. But tomorrow im going to my dr and im gona bring her my evidence that I have it.
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